And then there were two
To Be or Not To Be.
That is The Question
Dementia: Understanding the Challenge of Dementia
God Only Knows

Alzheimer’s
Close friend Barry Armstrong took his terminal breath on September 12th last year. It wasn’t a shock, for in contrast with the positive record of medical wins elsewhere in the body, dementia has a predictable timeline which ends in a victim’s death.
As you know, neurodegenerative symptoms like memory loss, confusion, and difficulties in speech and understanding, all worsen over time, as dementia prevents brain cells from functioning properly.
Its like a car engine in pieces on the garage floor—everything is there, but without a mechanic to assemble it, the car cannot run. It’s an analogy Barry, ever the practical man, would appreciate.
Barry was one of nearly a million people living with dementia in the UK. As the population ages, this number could rise to 1.7 million by 2040. I reflect on Barry’s friendship, our loss, and his legacy through one pair of eyes, mine. Like everyone else, he will have developed a close relationship with his mother before his birth. And then his Dad took him to see England win the 1966 World Cup. Lucky boy, followed by relationships with family, and with friends at school and university.
Music and Memory
I recently found myself singing “God Only Knows” by the Beach Boys, harmonies arranged by Brian Wilson in the 1960s. Brian died 3 months before Barry, after battling numerous illnesses, including dementia, contracted in 2023.God Only Knows ed as I grieved for Barry that the leading light of the Beach Boys, Brian Wilson had died just 3 months earlier than Barry, from a concoction of complaints, including dementia. The Beach Boys sound was a vivid part of my adolescence. It’s now become an eloquent part of my old age. A favourite Beach Boys song from my teens simplifies relationship breakups with the bottom line to any existential issue… “only God knows” runs: “If you should you ever leave me, what good would living do me?
God only knows what I’d be without you”
Red Cardinal
I add to this story is the legend of my favourite bird, the male red cardinal which relates to every part of his experience, from cradle to grave, from foetus to eternity.
First Encounters and Enduring Friendship
Let’s return to Leeds Polytechnic in September 1970, where I first met Barry—a vibrant, proactive young man. I had spent the summer in New Jersey, following my girlfriend to a suburb of New York, only to fail my first-year university exams and lose my girlfriend. It was a sad summer. On returning to the UK in September, I secured an undergraduate place at Leeds. It was in a lecture theatre there that Barry and Carl saw me registering, sporting a New York tan and a Mickey Mouse T-shirt. Barry remarked to himself, “That young Armstrong looks like he needs taking care of (I did). I’ll do it!”, Thus began a friendship that would span fifty-five years.
Origins and Endurance
I first met Barry as a vibrant and proactive young man half a century ago in Leeds.
That summer, I had followed my Yorkshire girlfriend to New Jersey, only to lose both my relationship and my university place. Returning to the UK, Leeds, Barry saw me walk into the lecture theatre, sun-tanned and in a Mickey Mouse T-shirt, and decided I was in need of care.
The picture above is me with Barry, a red cardinal bird, and Carl in the early 1970s, a relationship that was to last 55 years,
Barry was a vibrant and proactive young man.
Barry’s New Team
Next Wednesday Barry will be trialling for the football team in Heaven. It’s no Roker Park, but it’s an upgrade on the Stadium of Light. Perhaps the Stadium of Eternal Light. When I say football team, bear in mind there’s a lot of talent up there.
Immortality by American housewife Mary Elizabeth Frye
The poem “Immortality” fits how Barry’s story ends. For now:
Do not stand at my grave and weep, I am not there. I do not sleep. I am a thousand winds that blow, I am the diamond glints on snow. I am the sunlight on ripened grain. I am the gentle autumn rain. When you awaken in the morning’s hush I I am the swift uplifting rush of quiet birds in circled flight. I am the soft stars that shine at night. Do not stand at my grave and cry; I am not there. I did not die.
Now I’ explain why I put a red bird in the picture with Barry. It’s a male Red Cardinal.
Legend has it that male cardinals fly between heaven and earth, to reassure loved ones on Earth that their loved one is OK.
Faith and Lessons
I’m a Christian of the St James ilk. You will remember him as a fisherman who worked on the Galilee. It’s a romantic job. I come from a coal mining area in South Yorkshire, which is another romantic occupation. The reality is the opposite.
James was a man who saw experience as a no pain no gain deal, who wrote 2,000 years ago “Rejoice when you face trials of many kinds because they give you endurance”.
James didn’t mean “clap your hands and shout “Hooray”, but that you should take a deep breath and know your sad experience taught you something.
James was a cousin of Jesus. He had a fiery temper, and was beheaded 10 years after Jesus was executed
The red bird in the picture with Barry is a male Red Cardinal. According to legend, male cardinals travel between heaven and earth to reassure loved ones that their departed are well.
Brotherhood and Longing
Though Barry and I share a surname, we are not related. I wish we were, and I believe the feeling was mutual. I cannot imagine a better brother than Barry.
Hope and Progress
Medical advances continue to be made in seemingly incurable diseases. Recently, I learned of a cure for a rare children’s blood cancer. There are hundreds, possibly thousands, of debilitating diseases yet to be conquered, but one by one, they will be overcome. For Barry’s illness, the time has not yet come, but when it does, there will be a celebration in heaven—and Barry will already be there, wearing a party hat!
Last September was Barry’s Hamlet moment, when his mind chose “not to be.”
Wishes for the Future
After witnessing Barry’s decline, I hope and pray that 2026 will bring better days for his loved ones.
Final Thoughts
325 years ago William Shakespeare put a memorable soliloquy into Hamlet’s mouth: To Be Or Not To Be – That is The Question and it was the overarching reason for me writing Barry’s Story as I did. In 1962 Bob Dylan responded in song to Shakespeare’s conundrum:: The Answer is Blowing in The Wind and choreographer Brian Wilson dotted the i’s and crossed the t’s when he penned “God Only Knows”, a song which explores relationship endings: “Should you ever leave me, though life would still go on, believe me God only knows what I’d be without you.” God bless Barry Armstrong.

